Bleeding disorders patients depend on access to quality, affordable healthcare for all of their lives.

Access to affordable healthcare is not optional for people with bleeding disorders, it’s lifesaving. But proposed cuts to Medicaid and Marketplace subsidies threaten to put essential care out of reach for thousands of families in our community.If these cuts move forward, the consequences will be real and immediate:Loss of Medicaid coverage, leaving people without access to high-cost, essential treatmentsHigher insurance premiums, making Marketplace plans unaffordable if enhanced Advanced Premium Tax Credits (ePTCs) are reducedIncreased financial strain on families already managing the high cost of chronic careThese aren’t abstract policy debates. They are decisions that directly affect whether people can access the care they need to survive. We Can’t Let This HappenLawmakers need to hear directly from the people and families who will be impacted. When advocates speak up, it makes a difference and right now, your voice is critical.By taking action today, you are helping protect:Access to lifesaving treatmentsAffordable health insurance optionsFinancial stability for families in the bleeding disorders communityTogether, we are stronger, and together, we can protect the healthcare programs our community relies on.

The bleeding disorders community has lived through tragedy before. In the 1980s, contaminated blood products claimed thousands of lives and devastated families across the country. Out of that pain came new safeguards—lifelines that protected patients and restored trust in the blood supply. But today, those safeguards are at risk. Without strong action, the hard lessons of the past could be forgotten, and history could repeat itself. Our nation's blood disorder services are in jeopardy. Rebuilding the CDC Division of Blood Disorders and reinstating the experts of the Advisory Committee on Blood and Tissue Safety and Availability (ACBTSA) is needed urgently. Emailing your representatives about this crisis could create positive change and prevent another 'Bad Blood' era. Let's ensure safe blood supplies for every American!

Right now, some insurers use “copay accumulator” policies that create hidden barriers to care.Copay accumulators are insurance policies that prevent financial assistance from counting toward a patient’s deductible or out-of-pocket maximum.Here’s how it works:Many patients with serious or rare conditions rely on copay assistance — often from manufacturers or foundations, to afford their medications. Normally, when a payment is made, it helps the patient move closer to meeting their deductible or yearly out-of-pocket limit.But with a copay accumulator in place, the insurance company still accepts the payment and gets paid, it just doesn’t credit it toward the patient’s deductible or out-of-pocket maximum.When that assistance runs out, families can suddenly owe thousands of dollars, even though payments were already made earlier in the year.For people living with bleeding disorders, treatment is life-sustaining and non-negotiable. These unexpected costs can disrupt access to care and create serious financial strain.The bipartisan HELP Copays Act would require all payments made on behalf of a patient to count toward their cost-sharing limits, close loopholes insurers use to avoid this responsibility, and help create clear, reliable pathways to care.Take action today.Ask your Members of Congress to cosponsor the HELP Copays Act and ensure copay assistance counts toward patient costs. When we speak up together, we protect access to life-sustaining treatment and keep care within reach for our community.