Your Story Could Protect Someone’s Access to Treatment
For people with bleeding disorders, treatment isn’t optional. It’s life-sustaining.
But copay accumulators, maximizers, and Alternative Funding Programs (AFPs) are making care less predictable and less affordable.
When financial assistance doesn’t count toward your deductible…
When an insurer changes how you access medication…
When bills show up unexpectedly…
It doesn’t just impact finances.
It impacts stability. Health. Peace of mind.
And lawmakers need to hear that.
Policy terms don’t move Congress.
People do.
If you’ve experienced one of these insurance practices, your story can help protect clearer, more reliable access to treatment for others.
You don’t need perfect words.
Just tell us what happened.
To Help Us Use Your Story Effectively, Consider Sharing:
1. What changed?
When did you first learn your plan had a copay accumulator, maximizer, or AFP?
2. What was the financial impact?
Did you receive unexpected bills? Did assistance stop counting toward your deductible? Roughly, how much did it cost you?
3. What was the human impact?
Did it cause stress? Delay treatment? Force tough financial decisions?
4. What would you want a Member of Congress to understand?
If they had 60 seconds with you, what would you say?
How to Share
You can:
But copay accumulators, maximizers, and Alternative Funding Programs (AFPs) are making care less predictable and less affordable.
When financial assistance doesn’t count toward your deductible…
When an insurer changes how you access medication…
When bills show up unexpectedly…
It doesn’t just impact finances.
It impacts stability. Health. Peace of mind.
And lawmakers need to hear that.
Policy terms don’t move Congress.
People do.
If you’ve experienced one of these insurance practices, your story can help protect clearer, more reliable access to treatment for others.
You don’t need perfect words.
Just tell us what happened.
To Help Us Use Your Story Effectively, Consider Sharing:
1. What changed?
When did you first learn your plan had a copay accumulator, maximizer, or AFP?
2. What was the financial impact?
Did you receive unexpected bills? Did assistance stop counting toward your deductible? Roughly, how much did it cost you?
3. What was the human impact?
Did it cause stress? Delay treatment? Force tough financial decisions?
4. What would you want a Member of Congress to understand?
If they had 60 seconds with you, what would you say?
How to Share
You can:
- Write a few sentences
- Share a longer reflection
- Record a short video
Share Your Story Today
Your experience could be the reason someone else keeps access to the treatment they need.
Turn Your Story Into Impact
Protect Access to Affordable Treatment
Share your story today. Your voice strengthens our advocacy and helps shape a better future for people with bleeding disorders.
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Your Story Could Protect Someone’s Access to Treatment
For people with bleeding disorders, treatment isn’t optional. It’s life-sustaining.
But copay accumulators, maximizers, and Alternative Funding Programs (AFPs) are making care less predictable and less affordable.
When financial assistance doesn’t count toward your deductible…
When an insurer changes how you access medication…
When bills show up unexpectedly…
It doesn’t just impact finances.
It impacts stability. Health. Peace of mind.
And lawmakers need to hear that.
Policy terms don’t move Congress.
People do.
If you’ve experienced one of these insurance practices, your story can help protect clearer, more reliable access to treatment for others.
You don’t need perfect words.
Just tell us what happened.
To Help Us Use Your Story Effectively, Consider Sharing:
1. What changed?
When did you first learn your plan had a copay accumulator, maximizer, or AFP?
2. What was the financial impact?
Did you receive unexpected bills? Did assistance stop counting toward your deductible? Roughly, how much did it cost you?
3. What was the human impact?
Did it cause stress? Delay treatment? Force tough financial decisions?
4. What would you want a Member of Congress to understand?
If they had 60 seconds with you, what would you say?
How to Share
You can:
But copay accumulators, maximizers, and Alternative Funding Programs (AFPs) are making care less predictable and less affordable.
When financial assistance doesn’t count toward your deductible…
When an insurer changes how you access medication…
When bills show up unexpectedly…
It doesn’t just impact finances.
It impacts stability. Health. Peace of mind.
And lawmakers need to hear that.
Policy terms don’t move Congress.
People do.
If you’ve experienced one of these insurance practices, your story can help protect clearer, more reliable access to treatment for others.
You don’t need perfect words.
Just tell us what happened.
To Help Us Use Your Story Effectively, Consider Sharing:
1. What changed?
When did you first learn your plan had a copay accumulator, maximizer, or AFP?
2. What was the financial impact?
Did you receive unexpected bills? Did assistance stop counting toward your deductible? Roughly, how much did it cost you?
3. What was the human impact?
Did it cause stress? Delay treatment? Force tough financial decisions?
4. What would you want a Member of Congress to understand?
If they had 60 seconds with you, what would you say?
How to Share
You can:
- Write a few sentences
- Share a longer reflection
- Record a short video
Share Your Story Today
Your experience could be the reason someone else keeps access to the treatment they need.
